Last week, Sarah had an EEG. It was set up at home. The EEG was suppose to be 48 hours, but overnight Sarah messed with the head gear and by morning it was such a mess. So basically we got a 24 hour and while she was sleeping.
The WONDERFUL WONDERFUL news is that according to her neurologist, he did not see any signs of seizures during this time. The spacing off, the hand and arm flapping, is most likely her stimming or day dreaming, quite possible an autistic characteristic. Not 100% sure, but of anything as long as it is not seizures causing this, then I am soo happy. She had started her new medication just over a month ago CLOBAZAM and I am wondering if that is the one drug helping her. She still is on Topomax, and we are weening her off of Risperdahl.
This has been the most WONDERFUL AND BLESSED NEWS we have had in MANY MANY YEARS!!!! God has answered our prayers. I am trying my best to keep this all positive, but on the other hand I have to be realistic. I am keeping my eyes and ears wide open and still staying alert just to be sure. So as or APRIL 16TH 2012, is the beginning of her seizure free!!!!!
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