Start of a remolded room for Hannah

Hannah has a new bed, a water bed to be exact, with drawers and storage thanks to our neighbors Kelly and Carl. THANK YOU GUYS!!!  Here is the before and after of her room.

We want to paint and clean up the walls. Add cork for displaying her work and her art and fun things.... its all a slow work in process. Hopefully we will have it done by the end of the year! She loves it and I am sooo happy. Man.... was it work getting it cleaned..... hopefully it WILL stay that way! :-))) 

Another milestone for Sarah!

Ever since Sarah was a baby... she has been rocked to sleep. Not every night, but at least 90% of the time. As she has gotten older and even recently, especially with a new routine, we rock her to sleep maybe 2 nights a week. Well last night was just another typical night, rocking her to sleep. (Its not anymore that she needs it so much, its us, still wanting that time with her)
Alot of times, I will rock her, then she will get up and go to her daddy and he will rock her till she is out. Usually he has a bed pillow under his arm to make it comfortable for both of them.
So last night, daddy was rocking her... all of a sudden she got up, grabbed the pillow, and laid it next to me on the couch. So I placed it under my arm.... she then grabbed it put it back next to me on the couch and got up on the couch, lied down and fell asleep.

What most dont know....is that this is the VERY FIRST TIME EVER, Sarah has done this. I mean EVER!!! For us as her parents.... this is a HUGE HUGE MILESTONE, A HUGE HUGE STEP towards her progressing, maturing and becoming a young lady.... no longer a baby. We were soo sooo amazed she did this and just blown away and soo happy. Sarah is SOOO SOOO much smarter than we know and she is slowly, but surely letting it out and showing us a bit more each and every day. We are so proud of her and love her more than words can say!

Latest News

I decided to add a Pay Pal account for donations for Sarah. Anyone wanting to donate to her and her medical   bills, foods, any need for herect..... anyone can and anything is sooo sooo much appreciated!

Well we've had such a busy week. Tuesday, Sarah had her hearing test where she needed to be put under and she had tubes in her ears. She was SUCH a trooper that day, but by the end of the night, very cranky. Cant blame her at all.

Hannah has been working hard getting ready for the end of the school year. She is doing soo well! This week she has her swim class, like she has every week. We are keeping our fingers crossed that she finally passes this class and she will be headed to the next level.

Darin has been working alot and I mean ALOT. He has been working a 2nd job still doing land surveying. However he is not sure when he will be getting paid for this work. Hopefully soon.

And finally....I had been getting sick.... and that stinks. Today I am finally getting my energy back. Moms are not allowed to be sick... but hopefully the worst is over!!

Also... I was officially hired on at UHaul, working from home, taking truck rental reservations. My training starts next week and it will be for 3 weeks. It is kind of a bummer that my training times will be during school times and not sure if I will be able to have lunch for visit both the girls schools before they get out.... but hopefully I will have enough time during the last part of May.

That is all for now!!!

Great News for Sarah!!!!!!

Well I have such wonderful news to share. I will post this part on Sarah's page as well.

Last week, Sarah had an EEG. It was set up at home. The EEG was suppose to be 48 hours, but overnight Sarah messed with the head gear and by morning it was such a mess. So basically we got a 24 hour and while she was sleeping.

The WONDERFUL WONDERFUL news is that according to her neurologist, he did not see any signs of seizures during this time. The spacing off, the hand and arm flapping, is most likely her stimming or day dreaming, quite possible an autistic characteristic. Not 100% sure, but of anything as long as it is not seizures causing this, then I am soo happy. She had started her new medication just over a month ago CLOBAZAM and I am wondering if that is the one drug helping her. She still is on Topomax, and we are weening her off of Risperdahl.

This has been the most WONDERFUL AND BLESSED NEWS we have had in MANY MANY YEARS!!!! God has answered our prayers. I am trying my best to keep this all positive, but on the other hand I have to be realistic. I am keeping my eyes and ears wide open and still staying alert just to be sure. So as or APRIL 16TH 2012, is the beginning of her seizure free!!!!!