My GOSH! Has it been a LONNNGGG time since I have posted on here. Shame on ME! Well I will do all I can to keep it going this time.
So much to say, so much to catch up on. But will try to make it brief as I can if that is possible.
Well, since my last post, life took a crazy turn in 2012. So many things happened.
After Sarah's surgery, in August Darin lost his job. We were just stressed and stretched beyond belief. Then in October my dad unexpectedly passed away. Still does not seem real. December my step dad had surgery to remove a brain tumor that was found due to a different health issue he was having. Thankfully he has had a full recovery.
Bring us to 2013. At the end of January of 2013, I decided to become baptized. That was one amazing day... I know the exact moment my old life ended and my new one began. That I will carry with me always.
The very next day, Darin left to Arizona to start a new job in a different state Texas. So since then, he has been traveling and working a lot. Most of 2013 I played the role of a "single mom". Its was and still is overwhelming, but surprisingly empowering. I did not realize how much I could really do on my own.
Not to say that I don't have help. I am blessed to have family and our wonderful providers. We had a few changes in providers from 2012 to 2013, which looking back, was in the cards. Not a good thing, but not a bad thing either, just how things needed to be. Currently we have 2 wonderful ladies that I know love and care for Sarah and really are there for Hannah as well as for me. It's been a wonderful balance and the consistency, dependability and especially predictability has played a HUGE role is Sarah's recent progress and played an even huger role in keeping my sanity. (lol!!)
Sarah also started therapies at A Brighter Avenue. She is currently receiving Speech, Feeding, Occupational and Physical Therapy. February will be a year she has been with them. Holy Moly time has flown by!!!!
Sarah is finally starting to engage, listen, be calm and follow directions. Just seeing her pay attention and do what is asked of her, with out her trying to escape or avoid the task by being onery, is a HUGE HUGE step for her. She is smart enough to do what is asked, its just a matter of her trusting and being comfortable, and that is finally is. What a happy mom I am!
Issue with the families health had been good. But I did have a few scares in September of last year. As I was going to my yearly "Well Woman" check, there was a lump that was found in my breast.
So I was sent to get a mammogram and then they decided to do a ultrasound the same day. I really became nervous and thought..... "Oh heck no....not now!!!!!!" As far as all of our health, things have been going well. So like I usually do, when in a stressful situation, I go on survival mode and shut down emotionally. I have not choice when you have little ones depending on you. You can not fall apart.
Soon after I had to have the lump aspirated and was so very sore for the next week. That had to of been one of the hardest times for me emotionally in such a long time. I did all I could to not think about it, but it weighted heavily on my heart, my soul and I shut down just to get through each day. I did not share this with many because any sympathy or talking about it before any results came in, I was terrified would trigger emotions and I would fall apart. I was not going to let that interfere with me talking care of my girls. I could not chance that at all. I was so fearful any emotional anything would break me and I could not afford that.
Several days later I got the call that I was in the clear. WOW!!!!!!! What a HUGE weight off my shoulders. After the news sunk in, I basically said to my self... "Ok... what next? and "Lets move on!" I just thank GOD that is was not cancerous.
So a few other disappointment happened and once again I said to myself.... "Just move on." I cant live my life in the past, the should of's, could of's and would of's. It does not solve anything. I have also realized in certain areas of our lives, I now know more than ever what we need to thrive and progress. Especially in Sarah's world.
As far as our Miss Sarah, she has just blossomed! We have had a few but huge changes that I know have effected her personally, but I have found talking to her when we have that one on one time while I take her to appointments or therapy, really help.
When I pick her up from school and I am told she is having a bad day, like we all do, I will TALK to her. Especially if there is something going on at that moment in our lives, I will talk TO her. No radio, no other noise. Just her and I in conversation. I can see in her eyes she DOES understand and absorb what is being said. I can tell because soon after we do have our "conversations" her days at school seem to improve.
Hannah.... oh my Hannah! She is such a smart child. She was on the Honor Roll twice last year and is still getting really good grades. She is still swimming twice a week and loves it. Some days she is just not in the mood to go, but I have to hand it to her, she still follows through and I am very proud of her.
I think however, she is hitting the "tween" a bit early, especially with all the emotions flying all over the place at times. My New Years Eve resolution was to not get upset so quickly. So I am working on being calm during any storms that occur between her and I. She hates that I am not reacting like I used to. She thinks that I don't care, I do, but its just not worth getting mad or upset about and she is puzzled. Its quite funny at times.
Last and this will be the beginning of my next post, soon, Sarah seems to be having a whole lot more of the spacey episodes. I have a call and email in to the neurologist office to see what we can do.
Lots of appointments next week as well and will go into that then.
Lets see if I can keep this one going! :-))))
Tuesday, January 21, 2014
Saturday, October 6, 2012
We are still having issues with our Sarah. I just know it has to do with the shunt replacement surgery she had. Also she is loosing her hair and it looks like some hair was cut or something. I remember it being that way, but did not think a thing about it a few weeks back. I don't think anyone did it.... it just looks that way.
So I decided to start doing some research on the seizure med she is on the Onfi/Clobazam. There are a few places where hair loss is a side effect... but like other meds there are a laundry list of side effects too.
Also, I signed up for NeuroTalk.org and asked questions on some of the issues that comes with the after effects of surgery.
The are still having issues that replied was so incredible informing. Stating that they had many revisions, and here is a bit of what they said: "First thing I can address is the amount of time it's taking her to recover. There are many factors that go into a recovery time and it sounds like your daughter had a lot of those factors. For instance, the fact that (it sounds like) it takes a while for her malfunctions to be pinpointed. It's the curse of the slit ventricles, (i've got them too). The problem that it poses for recovery is that the longer your daughter was living with a shunt malfunction (headache, dizziness, blurry vision, balance issues)the longer it takes for all of those things to return to baseline. For example, I had sunset eyes and blurry vision for two days before a shunt surgery, and it took two months for my vision to return to normal. It was incredibly frustrating, and I only had that symptom for 2 days before it was corrected!
Also they stressed that IS major surgery. Here is another part of what they stated. "Another thing you mentioned was that it sounds like she had incisions in her abdomen and head, indicating that they replaced the entire tube. This is in fact a pretty major surgery and recovery should be assessed separately from the short surgeries on the proximal catheter at the end. When new tubing is put in your body many times there is bruising along every spot that they had to jam the tubing through (sorry to be crude but that it literally how they have to move it around in the body sometimes). The small incisions that you see on the outside of your daughter's body, are no indication of what her body went through, and that's one of the hardest things to remember."
As much as I need and have to hear this.... it still breaks my heart that she has to go thru ANY of this.
Also they said as for the pains on her head and scalp... this is what they said... "my scalp and incision was EXTREMELY sensitive (and still is). The nurses told they thought it was because we have so many more nerves in our faces so the fact that the incision was so close to my face probably lit up a bunch more nerves.
So now the question is... if in fact she is still having sensitivity issues with the incisions.... maybe when we do find an OT, we can figure out a sensory plan to help overcome this issue.
Just wanted to post this while I had a moment of free time and to hopefully think this through and figure out where we go from here.
Love,
Vicki
So I decided to start doing some research on the seizure med she is on the Onfi/Clobazam. There are a few places where hair loss is a side effect... but like other meds there are a laundry list of side effects too.
Also, I signed up for NeuroTalk.org and asked questions on some of the issues that comes with the after effects of surgery.
The are still having issues that replied was so incredible informing. Stating that they had many revisions, and here is a bit of what they said: "First thing I can address is the amount of time it's taking her to recover. There are many factors that go into a recovery time and it sounds like your daughter had a lot of those factors. For instance, the fact that (it sounds like) it takes a while for her malfunctions to be pinpointed. It's the curse of the slit ventricles, (i've got them too). The problem that it poses for recovery is that the longer your daughter was living with a shunt malfunction (headache, dizziness, blurry vision, balance issues)the longer it takes for all of those things to return to baseline. For example, I had sunset eyes and blurry vision for two days before a shunt surgery, and it took two months for my vision to return to normal. It was incredibly frustrating, and I only had that symptom for 2 days before it was corrected!
Also they stressed that IS major surgery. Here is another part of what they stated. "Another thing you mentioned was that it sounds like she had incisions in her abdomen and head, indicating that they replaced the entire tube. This is in fact a pretty major surgery and recovery should be assessed separately from the short surgeries on the proximal catheter at the end. When new tubing is put in your body many times there is bruising along every spot that they had to jam the tubing through (sorry to be crude but that it literally how they have to move it around in the body sometimes). The small incisions that you see on the outside of your daughter's body, are no indication of what her body went through, and that's one of the hardest things to remember."
As much as I need and have to hear this.... it still breaks my heart that she has to go thru ANY of this.
Also they said as for the pains on her head and scalp... this is what they said... "my scalp and incision was EXTREMELY sensitive (and still is). The nurses told they thought it was because we have so many more nerves in our faces so the fact that the incision was so close to my face probably lit up a bunch more nerves.
So now the question is... if in fact she is still having sensitivity issues with the incisions.... maybe when we do find an OT, we can figure out a sensory plan to help overcome this issue.
Just wanted to post this while I had a moment of free time and to hopefully think this through and figure out where we go from here.
Love,
Vicki
Monday, October 1, 2012
Lately and ever so slowly escalating, Sarah's desire to "want to take a bite" of ANYTHING, whether it be her sippy cup with water, a spoonful of food or even teeth brushing, has become quite a regression. She was doing so amazing before her shunt surgery. So many things seemed to have changed in the last 3 months.
Bath time is literally a nightmare for her. She will scream and cry, but yet still step in the tub. She wont sit down and will cry as if she knows something painful is about to happen. Last bath on Saturday, she did just that and then hugged me for a very long time. Crying with full blown tears. I finally pulled her away and explained to her that she needed to be bathed and I promised it would be super fast. With the rinsing and washing of her hair, then the final rinse... she cried like it was excruciating. As soon as the final rinse was done, I expected her to fly out of the tub. On the contrary... she decided to sit down and fill the tub with water and played for the next 30 minutes. Happy as a clam.
Some may think that this is behavior and some will just excuse it as so and want to move on. I, however, her mom, the person that knows her best, I refuse to excuse it and just brush it off so fast and will explore every avenue until I have some kind of an answer. With her being non verbal, I would die if she was going thru some kind of pain and did not try to find out what it is and I would be a terrible mom if I did not investigate it the best I can.
She is exhibiting this kind of behavior at school as well. Crying real tears. Crying is not a part of her pattern.Yes, if she does not want to do something... she will get mad and fight it... but NEVER cry like she has. She is extremely stubborn and would throw a temper tantrum that to cry like she has been.
Here is a before video of Sarah cooperating during a feeding session and there is one a few months after. Mind you we have tried to work with her in the middle of these sessions. She was in the hospital back in June for an emergency shunt replacement surgery because it had become so clogged. Then stayed the next 7 days because she had a virus. This was a HUGE set back for her.
Now here is a video of her having an absolute melt down. We, her parents, do all we can to work with her every day. Even keeping her sippy cup out and allowing her to want it. We present it to her as often as possible, but we are at a loss. Not sure why she is so upset like she is.
Just wanted to post this as soon as I could just in case ANYONE would be able to tell me what they see that I am not seeing.
Victoria
Bath time is literally a nightmare for her. She will scream and cry, but yet still step in the tub. She wont sit down and will cry as if she knows something painful is about to happen. Last bath on Saturday, she did just that and then hugged me for a very long time. Crying with full blown tears. I finally pulled her away and explained to her that she needed to be bathed and I promised it would be super fast. With the rinsing and washing of her hair, then the final rinse... she cried like it was excruciating. As soon as the final rinse was done, I expected her to fly out of the tub. On the contrary... she decided to sit down and fill the tub with water and played for the next 30 minutes. Happy as a clam.
Some may think that this is behavior and some will just excuse it as so and want to move on. I, however, her mom, the person that knows her best, I refuse to excuse it and just brush it off so fast and will explore every avenue until I have some kind of an answer. With her being non verbal, I would die if she was going thru some kind of pain and did not try to find out what it is and I would be a terrible mom if I did not investigate it the best I can.
She is exhibiting this kind of behavior at school as well. Crying real tears. Crying is not a part of her pattern.Yes, if she does not want to do something... she will get mad and fight it... but NEVER cry like she has. She is extremely stubborn and would throw a temper tantrum that to cry like she has been.
Here is a before video of Sarah cooperating during a feeding session and there is one a few months after. Mind you we have tried to work with her in the middle of these sessions. She was in the hospital back in June for an emergency shunt replacement surgery because it had become so clogged. Then stayed the next 7 days because she had a virus. This was a HUGE set back for her.
Now here is a video of her having an absolute melt down. We, her parents, do all we can to work with her every day. Even keeping her sippy cup out and allowing her to want it. We present it to her as often as possible, but we are at a loss. Not sure why she is so upset like she is.
Just wanted to post this as soon as I could just in case ANYONE would be able to tell me what they see that I am not seeing.
Victoria
Friday, September 28, 2012
Well isn't life GRAND
So I decided to go back to work. At the time it was not really about the money, yes we always need that, but in addition too, I just needed to get back to being around more adults, structure and just something that was mine. I decided to work at a school, an elementary school to be exact. I was hired on to be a Paraprofessional. I truly LOVED working with the kiddos. I never thought in a million years my entire heart would be into it. I knew that I would really enjoy it, but I truly found my passion.
Well as life works, and seems to work for us, shortly after, Darin was laid off. Now we were left with no main income and no insurance. I had asked to see if I could have an increase in hours, but that would of meant that I would be eligible for benefits. Well they just did not have a position for me to do that.
Now with Darin home, it was nice and super convenient to have him home when the girls got home and he could meet them at the bus.
Let me back up a bit... our precious and wonderful provider had to leave us for personal reasons. We miss her sooo much... and she still comes to see Sarah. But we wish her the very best in everything and we are keeping in touch.
So with that said..... since there is no one else here in the afternoons.... it was becoming challenging for Darin. I found myself still needing to manage all of Sarah's care. It was becoming so overwhelming and I found myself just so caught in the middle of work, Sarah's issues and plus having to take care of new things with Hannah. I knew that Darin could not manage all of that like I had done for years, so with a super heavy heart, I had to resign. We would for sure be hurting for the money, and I miss the wonderful kiddos from the school sooo much, but my family really needed me and I think FINALLY Darin sees how much I do take care of.
So now, Darin is looking for work. Not sure if he can get back into the profession he was in and if he did, we are worried how steady it would be and if it paid the bills, plus the benefits too are so needed.
As for Sarah, I am getting concerned with her over all health. Since her shunt surgery... she has regressed in her feeding and just seems different.Some good and some things to worry about. I think its just a massive combination of things.... way to many big changes, and since things are stressful here, I know she can feel it.
Sarah was evaluated for an Aug Com devise, to help her communicate and hopefully we should have it before the end of the year. I am going to dive into learning all I can and help her all that I can too. I cant wait for this new one to open up her world... and our world to her.
Hannah is doing well. She is still the out going spunky girl. Now she is in the 4th grade... so different and so much more to do. We are finally getting her on a good schedule and at least at home she is getting better as each day goes by. Her grades are wonderful, math is kind of an issue right now, but we are getting there.
So that is whats going on at the Z house these days.
Have a great night!!!
Well as life works, and seems to work for us, shortly after, Darin was laid off. Now we were left with no main income and no insurance. I had asked to see if I could have an increase in hours, but that would of meant that I would be eligible for benefits. Well they just did not have a position for me to do that.
Now with Darin home, it was nice and super convenient to have him home when the girls got home and he could meet them at the bus.
Let me back up a bit... our precious and wonderful provider had to leave us for personal reasons. We miss her sooo much... and she still comes to see Sarah. But we wish her the very best in everything and we are keeping in touch.
So with that said..... since there is no one else here in the afternoons.... it was becoming challenging for Darin. I found myself still needing to manage all of Sarah's care. It was becoming so overwhelming and I found myself just so caught in the middle of work, Sarah's issues and plus having to take care of new things with Hannah. I knew that Darin could not manage all of that like I had done for years, so with a super heavy heart, I had to resign. We would for sure be hurting for the money, and I miss the wonderful kiddos from the school sooo much, but my family really needed me and I think FINALLY Darin sees how much I do take care of.
So now, Darin is looking for work. Not sure if he can get back into the profession he was in and if he did, we are worried how steady it would be and if it paid the bills, plus the benefits too are so needed.
As for Sarah, I am getting concerned with her over all health. Since her shunt surgery... she has regressed in her feeding and just seems different.Some good and some things to worry about. I think its just a massive combination of things.... way to many big changes, and since things are stressful here, I know she can feel it.
Sarah was evaluated for an Aug Com devise, to help her communicate and hopefully we should have it before the end of the year. I am going to dive into learning all I can and help her all that I can too. I cant wait for this new one to open up her world... and our world to her.
Hannah is doing well. She is still the out going spunky girl. Now she is in the 4th grade... so different and so much more to do. We are finally getting her on a good schedule and at least at home she is getting better as each day goes by. Her grades are wonderful, math is kind of an issue right now, but we are getting there.
So that is whats going on at the Z house these days.
Have a great night!!!
Sunday, September 9, 2012
Yes... its been QUITE a while since my last post
For some reason this did not post.... its from a while ago.
I know its been SEVERAL months since my last post. So much had gone on that I had a mental shut down.
Our house FINALLY became a HOME. Well its always been a home, but now it looks sooo sooo beautiful.
It has taken and its still a work in progress getting moved back in. Majority of our things were boxed up in the garage and the living room. With it being summer and the girls out of school, Darin working and just feeling soo overwhelmed as it was, it was and still is taking literally forever to get things back together. Doing repairs, painting, touch ups and just getting all of our rooms back together along with redecorating made it for a long and crazy summer.
We were not even home a week and Sarah wound up in the hospital again. On the first Friday we were home, in the morning she starting fussing soon after I gave her the first morning feeds. I just thought she was getting board or tired or maybe it was gas. The fussing soon escalated into full blown screaming, crying, throwing herself down on the tile, hitting her head at the back arcadia door. She screamed so much, she threw up her feeding. I could not get her to calm down for anything. I was so scared. I had not seen her like that in such a long time. I just knew it was far more than gas. I yelled for Hannah to bring me the phone and called 911. Sarah was still screaming and I could not even hear the operator. Before I knew it, the paramedics were here and so was Shanon. Sarah was still sitting by the back door and still screaming while they were here trying to get information from me. Finally they started talking to Shanon.
All of a sudden she started slowly calming down and I was able to give them what they were needing from me. But Sarah still did not seem good. We talked about her going to the ER via ambulance, but I choose to drive her since she was calming down.
Once we got to the hospital, I immediately told them "My daughter is special needs, has seizures and has a shunt". The magic words, but honest words works every time. She got a room right away.
I still was feeling it was gas and she was backed up. They ran all kinds of tests, X-Ray, MRI, blood work.... they did it all. I felt so bad for her because she looked like a train hit her and had not eaten since the morning. They hooked her up to an IV too.
So we are waiting for the results, in the back of my mind, still thinking its just gas and she is constipated.
Finally the ER doctors came in and said "We are going to admit her." I was SHOCKED!!! They were not stating exactly why either. I just assumed it had to do with maybe seizures, or severe back up, which she has been admitted for before.
Once we got into the room, the phone in the room rang and it was Dr. Moss one of the neurosurgeons that works with her neurologist. At that point my head started spinning and my heart started racing. He was stating who he was, explaining all his experience, and on and on. All I could hear at the time was "Waaa waaa waaaa". and waiting for him to get to the point. (Not trying to be mean or rude when I say that at all. I was just in a state of shock and panic)
Then he said that her shunt was clogged and they need to do emergency surgery. They were waiting for a room. But things changed.
Later, we were told she will have surgery in the morning at 6am. They wanted to do more tests just to make sure they had all the information they needed.
So the next morning, at 4am she went into have another xray and MRI. Then at 5am Darin and I met with Dr. Moss. He showed us all her previous MRI's X-Rays and was showing us the differences.
There was a cyst with fluid build up that developed and the catheter that was suppose to help in draining fluid was practically clogged and causing the cyst to grow… causing pressure. The tubing that drains in her tummy, was practically clogged as well. Lord only knows if we had waited any longer what could of happened. I am just soo grateful that I followed my momma gut. I know in my heart that there is an angel looking after her and us. Soon after the surgery and she was back in her room, she had her color back. She was a healthy color of pink again. Before, she was so pale, ashy and almost looked jaundice. When she finally woke up and was alert, she quickly became the happy, ornery, beautiful sweet stinker we all know and love. Darin was right next to her when she woke up. About 30 minutes later, he got up to get some lunch, We soon noticed that she was very warm and started becoming cranky. Once again a fever spike of 101. So the nurse gave her some morphine and Tylenol and will stay on antibiotics for a while as well…. As it always seems to be with our coincidence QUEEN, she may of had an infection prior to the issues with her shunt or just some virus that flared up along the way. No one really knows. This fever and the throwing up lasted 4 more days. They did not want to release her until there was no fever spikes and she was keeping her feedings down. During the week of being in there, I got extremely sick. I had been up for 30 hours straight, slepted for 6, then back again for another 24 hours with no sleep. I took myself the the ER there, and was diagnosed with Bronchitis and had a fever. So I could not stay with her. I stayed at my moms for 2 days.... just slepted. Between Shanon and her Aunt Chris, she always had some one there. To get to the end of our story.... We came home on that Friday. Sarah slepted on the couch for 3 days with a feeding pump. By Monday, she was getting her strength back. Oh..... did I mention this happened on their BIRTHDAY???? We had a party set and everything. I feel soo bad that the girls did not get to have a party. We still have not had one for them. So much as gone on since then, but I wanted to post this just to catch up. I will post some more catching up in the next few weeks.
I know its been SEVERAL months since my last post. So much had gone on that I had a mental shut down.
Our house FINALLY became a HOME. Well its always been a home, but now it looks sooo sooo beautiful.
It has taken and its still a work in progress getting moved back in. Majority of our things were boxed up in the garage and the living room. With it being summer and the girls out of school, Darin working and just feeling soo overwhelmed as it was, it was and still is taking literally forever to get things back together. Doing repairs, painting, touch ups and just getting all of our rooms back together along with redecorating made it for a long and crazy summer.
We were not even home a week and Sarah wound up in the hospital again. On the first Friday we were home, in the morning she starting fussing soon after I gave her the first morning feeds. I just thought she was getting board or tired or maybe it was gas. The fussing soon escalated into full blown screaming, crying, throwing herself down on the tile, hitting her head at the back arcadia door. She screamed so much, she threw up her feeding. I could not get her to calm down for anything. I was so scared. I had not seen her like that in such a long time. I just knew it was far more than gas. I yelled for Hannah to bring me the phone and called 911. Sarah was still screaming and I could not even hear the operator. Before I knew it, the paramedics were here and so was Shanon. Sarah was still sitting by the back door and still screaming while they were here trying to get information from me. Finally they started talking to Shanon.
All of a sudden she started slowly calming down and I was able to give them what they were needing from me. But Sarah still did not seem good. We talked about her going to the ER via ambulance, but I choose to drive her since she was calming down.
Once we got to the hospital, I immediately told them "My daughter is special needs, has seizures and has a shunt". The magic words, but honest words works every time. She got a room right away.
I still was feeling it was gas and she was backed up. They ran all kinds of tests, X-Ray, MRI, blood work.... they did it all. I felt so bad for her because she looked like a train hit her and had not eaten since the morning. They hooked her up to an IV too.
So we are waiting for the results, in the back of my mind, still thinking its just gas and she is constipated.
Finally the ER doctors came in and said "We are going to admit her." I was SHOCKED!!! They were not stating exactly why either. I just assumed it had to do with maybe seizures, or severe back up, which she has been admitted for before.
Once we got into the room, the phone in the room rang and it was Dr. Moss one of the neurosurgeons that works with her neurologist. At that point my head started spinning and my heart started racing. He was stating who he was, explaining all his experience, and on and on. All I could hear at the time was "Waaa waaa waaaa". and waiting for him to get to the point. (Not trying to be mean or rude when I say that at all. I was just in a state of shock and panic)
Then he said that her shunt was clogged and they need to do emergency surgery. They were waiting for a room. But things changed.
Later, we were told she will have surgery in the morning at 6am. They wanted to do more tests just to make sure they had all the information they needed.
So the next morning, at 4am she went into have another xray and MRI. Then at 5am Darin and I met with Dr. Moss. He showed us all her previous MRI's X-Rays and was showing us the differences.
There was a cyst with fluid build up that developed and the catheter that was suppose to help in draining fluid was practically clogged and causing the cyst to grow… causing pressure. The tubing that drains in her tummy, was practically clogged as well. Lord only knows if we had waited any longer what could of happened. I am just soo grateful that I followed my momma gut. I know in my heart that there is an angel looking after her and us. Soon after the surgery and she was back in her room, she had her color back. She was a healthy color of pink again. Before, she was so pale, ashy and almost looked jaundice. When she finally woke up and was alert, she quickly became the happy, ornery, beautiful sweet stinker we all know and love. Darin was right next to her when she woke up. About 30 minutes later, he got up to get some lunch, We soon noticed that she was very warm and started becoming cranky. Once again a fever spike of 101. So the nurse gave her some morphine and Tylenol and will stay on antibiotics for a while as well…. As it always seems to be with our coincidence QUEEN, she may of had an infection prior to the issues with her shunt or just some virus that flared up along the way. No one really knows. This fever and the throwing up lasted 4 more days. They did not want to release her until there was no fever spikes and she was keeping her feedings down. During the week of being in there, I got extremely sick. I had been up for 30 hours straight, slepted for 6, then back again for another 24 hours with no sleep. I took myself the the ER there, and was diagnosed with Bronchitis and had a fever. So I could not stay with her. I stayed at my moms for 2 days.... just slepted. Between Shanon and her Aunt Chris, she always had some one there. To get to the end of our story.... We came home on that Friday. Sarah slepted on the couch for 3 days with a feeding pump. By Monday, she was getting her strength back. Oh..... did I mention this happened on their BIRTHDAY???? We had a party set and everything. I feel soo bad that the girls did not get to have a party. We still have not had one for them. So much as gone on since then, but I wanted to post this just to catch up. I will post some more catching up in the next few weeks.
Saturday, May 26, 2012
Latest Update
So as of Friday we are starting our 3rd week. We met with the home adjuster and Eric from Patterson Construction to determine what all the repairs will be and how long it will take. Most likely we will be here one more week. It looks as if we are going to get new tile through out the house except the living room and we are going to paint the girls rooms and the girls bathroom before everything is back in place. That is exciting.
All in all I really can't complain because we are staying at such a beautiful place. I almost feel like a kid again. Biking and swimming practically anytime we want. The old athletic person in me is coming out again LOL!! We will not know what to do once we have to leave. I love love love love love swimming. It is so relaxing, gets the stress out and it wears me out. Just got to find a place where we can go swimming during the summer and just have fun. We have such a wonderful time and it's a great mother daughter, hubby and family bonding time.
It will be bittersweet to leave, but I sooo miss our home, our pets and our neighbors!!!
All in all I really can't complain because we are staying at such a beautiful place. I almost feel like a kid again. Biking and swimming practically anytime we want. The old athletic person in me is coming out again LOL!! We will not know what to do once we have to leave. I love love love love love swimming. It is so relaxing, gets the stress out and it wears me out. Just got to find a place where we can go swimming during the summer and just have fun. We have such a wonderful time and it's a great mother daughter, hubby and family bonding time.
It will be bittersweet to leave, but I sooo miss our home, our pets and our neighbors!!!
Monday, May 14, 2012
Here is what our beautiful house looks like now
Well here is what our house currently looks like. Almost like a new home under construction. So much mess everywhere. We still do not have a completion date.
We are all so wiped out! Darin and I just are not sleeping well at all. Miss Hannah woke up SUPER early this morning and is all out of sorts.
Sarah seems to be doing the best, however, when I dropped her off at her class, she then looked like a Mac truck hit her. I felt so bad leaving her.... but she seemed happy at the same time.
Hannah is sooo out of sorts.... the attitude is coming out in full force. Hopefully we can relax a bit today, (GOD fid that) and maybe have some fun taking advantage of the positive side of this and go swimming.
So that is where we are at right now.Please keep us in your prayers as we go through another rough patch. I am hopeful and sure we will get through this soon!
Sunday, May 13, 2012
Please pray for us
It seems like our situation is getting crazier and crazier by the day.
We don't know where we're going to be living after Tuesday or Wednesday of this week.
I am still trying to figure out how to continue training with my company, help the kids get ready for their last week and a half of school, and spend time at the house to keep up on what is going on. We still are unsure if this is going to take more than a month.
Please keep us in your prayers that we will get through this soon.
We don't know where we're going to be living after Tuesday or Wednesday of this week.
I am still trying to figure out how to continue training with my company, help the kids get ready for their last week and a half of school, and spend time at the house to keep up on what is going on. We still are unsure if this is going to take more than a month.
Please keep us in your prayers that we will get through this soon.
Friday, May 11, 2012
Here is the damage thus far
This is bare concrete. They process has begun. Carpets ripped up and soon the master bedroom, master bath, all of the back of the house will be torn out.... or at least that is what I have gathered for now. So we will be displaced for a while. OH THE JOYS!!!
This is nothing... but I am trying to stay positive!
This is nothing... but I am trying to stay positive!
Thursday, May 10, 2012
OUR WONDERFUL NIGHT LAST NIGHT!
OMMMMMMG!
Well life is soo fun her at the Zicafoose house! Last night as we were getting ready to go to bed, went to the back of the house to find our master bath and bedroom flooded with MASSIVE water!! All in the bathroom, most of the bedroom and hallway. URG!!! As Darin was scooping up water, I was saving all I could. It got into our storage closet and hit boxes with many valuables. THANK GODNESS I was able to save 90% of what I could. Today with another day of training, and lack of sleep, it should be interesting.
Well life is soo fun her at the Zicafoose house! Last night as we were getting ready to go to bed, went to the back of the house to find our master bath and bedroom flooded with MASSIVE water!! All in the bathroom, most of the bedroom and hallway. URG!!! As Darin was scooping up water, I was saving all I could. It got into our storage closet and hit boxes with many valuables. THANK GODNESS I was able to save 90% of what I could. Today with another day of training, and lack of sleep, it should be interesting.
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